We went for more blood work today and Roxy’s red blood cell count is low again, so we go for another transfusion tomorrow (and also outpatient chemo). I’m starting to wonder if she’s going to need a transfusion every time she has chemo. It’s not really a big deal (she did fine with it last time), but I feel bad that it’s just something else that makes her spend hours in the hospital. Hopefully we’ll still be home in the afternoon. I think last time we were there for about 3 hours.
White blood cells are also low so it looks like we’ll be spending Memorial Day weekend just the 4 of us. I’m glad Roxy was able to play with friends last weekend because I just feel like it isn’t worth the risk to let her be around other kids when her counts are so low. If she gets sick or a fever, she immediately gets admitted to the hospital. She hates it there, so I try to do everything I can to keep her away.
It has been a bit of a rough week so far. I think the girls and I are getting a little tired of each other. We aren’t used to spending so much time together and I’m really not used to the stay-at-home mom role. Today was much better. I think we are adjusting, but it’s going to take some time.
Our next chemo will be the 5 day stay. I think we’re all trying not to think about it right now because we are dreading it so much. We will probably be admitted late next week or early the following week – it all depends on her white blood cell count.
Thanks again for all the thoughts, prayers, and help.

2 comments on “More blood

  1. Tami

    Miss you and good thoughts your way!

  2. Tammy

    Luv you guys and don’t worry it will get easier!!!