We got home today from an overnight chemo stay and Roxy did AWESOME!!! She came home and ate as soon as she walked in the door (she never eats at the hospital because she says the food sucks – which it does). She had a great appetite before this chemo and I was really afraid she would lose it after chemo, but it’s looking good so far.
We have 17 more weeks of chemo. With delays due to low blood counts, that could be more like 25 or so, but at least we are getting there. At this point, our biggest concern is germs and fevers. As the season changes and germs become more prevalent, it is going to become more and more difficult for us to keep Rox healthy. We are all getting flu shots and I think I will have to make a rule that no one can come into our house who hasn’t had a flu shot. Even with that, I worry about colds and other viruses. The summer was definitely easier.
Scott and I are also starting to face the reality of the financial strain that all of this causes. I haven’t been getting paid for several months because I am on a medical leave of absence. Fortunately, my medical insurance was covered by FMLA until last month. Now we are paying over a thousand dollars a month for health insurance. Scott has health insurance offered through his employer, but it isn’t as good as mine and we would need to switch hospitals and doctors. We also have super confusing bills coming in from the Cleveland Clinic that don’t match our statements from Medical Mutual. All in all, the financial situation is a nightmare. We are fortunate enough to have great health insurance, but even at that it is a struggle. We are so thankful for all the money raised by Riverside Schools. Without it, we would be bankrupt by now. It just seems so sad and so wrong that a family who is dealing with a child with cancer would also have to face such awful financial hardships. Honestly. without help from family and friends, we would be living out of a car right now. That’s just wrong.
Ok. I’m sorry. I don’t want anyone to feel sorry for us. I just think it’s important for people to know what it’s really like. When you find out that your child has cancer, it is the worst feeling in the entire world. You never even think about money, but as time goes on you realize how impossible it is to make ends meet. On that same note, someone told me a while back that I should be able to work enough that I could keep my medical insurance. I think it’s really important for everyone to realize that all cancers are different and all treatments are different. Roxy has a Ewing’s tumor. While Ewing’s tumors are usually a “cure for life” tumor, they also involve the most intensive chemo treatment of any childhood cancer. For us, that means frequent hospitalizations and very little preparation. We don’t know every week when we will be admitted. We also have constant drops in blood counts which result in immediate transfusions. Again, I’m sorry. It’s just frustrating when people tell me what I should do based on a totally different situation.
Ok. I feel like my post has been angry. I apologize. I didn’t intend that. Roxy is doing awesome and she is being the amazing person that she is. I guess it’s just all the other stuff that annoys me. Thanks for reading this. I love all of you and thank you for your prayers and positive thoughts.

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